We are back from the Epilepsy Center at Cook Children's and have some great news to report! They were not able to detect any seizure activity on her 24 hour EEG! There was a video camera in her room that followed her around and recorded each "event" that we were seeing. The nurses were able to see the episodes that she was having as well as record what was going on with her heart and brain waves while they were happening. Although everyone who witnessed her doing this seemed to think it was seizures, the EEG showed that they were not seizures! The doctor told us to talk to our Pediatrician again and start looking for other answers. We are going to try a reflux medication first and see what happens.
We are just so relieved that she is not having seizures. Our little girl is a trooper! She wasn't exactly thrilled about having all the messy, smelly glue in her hair with all those electrodes, but she didn't fuss much after they were connected and did well throughout the testing. Thanks for keeping little Whit in your prayers! She is once again our little miracle baby.
http://www.infantrefluxdisease.com/sandifers-syndrome.php
5 comments:
Praise God, He does answer prayers!
much Love
xoxo
Michelle,
What wonderful news! Congratulations. We will continue to keep you all in our prayers.
Love,
Courtney
FABULOUS! Keep on giving it all you got Whit!
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thank you,
kelly
what wonderful news to bring peace to your hearts.... KNOWING what it is and what it is not is soooo good! PRAISE the LORD!
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