Surgery set for December 9th

Whitney's surgery for her eyes and ears as well as her MRI will be on Tuesday, December 9th at Cook Children's in Fort Worth. They estimated that she would be "under" for about 3 hours. This obviously will be a hard time for me as it's the first time I've ever had a child put under anesthesia and I'm scared to death. Please keep praying for our little girl! I'll post with pictures after the surgery is complete. Thanks for keeping up with us.

Surgery in the near future :(

Whitney has seen her ENT doctor and her Opthalmologist since the last post. The ENT wants to put tubes in her ears to prevent recurrent ear infections. She has a lot of fluid behind both ears.

She also saw her eye doctor this weekend. He agrees that her right eye turns in. He wants to correct the strabismus. They will be operating on both eyes to allow them to straighten out and improve her vision. He believes that operating early will give her the best chance of full 20/20 vision in the future.

So, we are waiting for the scheduling dept. to call us and tell us when they will be doing the two surgeries. They are hoping to be able to do both together along with her MRI that she was supposed to be sedated for. I asked her plastic surgeon if he wanted to try and do her cleft surgery as well, but he still wants to wait until she's closer to a year old.

Whitney is doing well right now. She will have an eye drop that we will use once a day in her left eye. It will dilate that eye and cause blurry vision forcing her to use the "bad" eye and strengthening the muscle in that eye.

Whitney will be 6 months old on Saturday! I can't believe how fast time flies.

Update

Whitney had some testing done recently. Her Physical Therapist thought she noticed Whit staring a lot. She was concerned that she may be having absent seizures. We agreed that she was staring, so off to her Neurologist we went. They did an EEG and determined that her brain activity seems to be normal and no seizure activity was noted during the testing. This doesn't necessarily mean that she is not having seizures, it simply means that no seizures were noted during this test. We were relieved that they seemed to think her brain was functioning properly according to the waves shown on the test. They commented that there were no low points, which I assume means she is responsive to stimuli, etc. We will keep you updated as we know more. Her next Neurology appt. is set for December when she will have her MRI under sedation. For now, we are nervous about her appointment tomorrow with the ENT doctor in Fort Worth. They seem to think she needs tubes ASAP instead of waiting for her cleft repair. Poor baby. Here are some pictures from the testing, smiling at Daddy while waiting for the testing and from working with her Physical Therapist whom she adores.