Whitney had a great Easter! We spent the weekend at my sister's house in Flower Mound. Taylor, my niece, was in town from college and we were able to spend some time with her. The boys had fun hunting Easter eggs in the backyard and daring each other to jump into the cold pool after being in the hot tub! Even Daddy got in on the dares. Whitney wore her Easter dress that Gigi picked out and looked like a little princess. Her shoes even had stone-embellished crowns on them :)Things have been going well for Whitney. All of her blood work and kidney ultrasound came back fine except for showing an elevated thyroid which will be rechecked in a few months. She had a high thyroid at birth, so that's not really a surprise, but we haven't had it checked since then. Jason also has a thyroid problem, so I guess it's his fault! haha She has fully recovered from Pneumonia and is healthy for now. (knock on wood). Her blood pressure continues to be high, but sometimes only in one arm. They still haven't figured that out. I'm thinking a visit to her Cardiologist, whom she hasn't seen since 2 months of age, is in the forecast.
We met with a case manager from the MDCP program (Medically Dependent Children) yesterday along with a nurse who evaluated Whitney. They will determine if she qualifies for a state waiver to bypass the waiting list she has been on since about 2 months of age. If she qualifies, she will receive Medicaid secondary to our private insurance as well as respite care and a nurse who will visit weekly. They also help with other costs associated with equipment, etc. This would be a LIFESAVER!!!! We are really praying that she is accepted. The only thing they require is that she stays one night in a nursing home, but I would be allowed to stay with her. I think I can live with that!
Whitney's new wheelchair is great. We got accustomed to the loaner wheelchair which was really easy to maneuver and more user-friendly. However, the new chair is more plush and smaller. It still weighs a lot! I have a hard time lifting it in and out of the car. I timed myself today, and it took 12 minutes to get all 4 kids along with all their stuff, diaper bag, and the wheelchair in or out of the car. Those of you who know my kids can imagine what this involves as far as fighting siblings and a screaming toddler (and I'm not talking about Whitney)! I dread the days when Jason is at work and I'm left to run errands with the whole crew, but I always seem to get it done. I have a great story about taking all 4 kids and all 3 dogs to the vet a few weeks ago. I almost lost one dog to a busy intersection, but miraculously we all made it home alive.
The boys have about six weeks of school left and are super-excited to be out for the summer. There are lots of activities planned at school for both big boys and we will be busy with those as well as soccer and baseball. Whitney has been a real trooper braving the high winds out at the ballpark. She loves watching her brothers play ball :)
