CT Scan and Another Trip to Cook Children's

Whitney has been "arching" a lot more lately and her speech therapist even mentioned last week that Whit's forehead seemed to be bulging more than usual. Whitney was running a low grade fever on Wednesday of last week, so I took her in to see her Pediatrician on Thursday. Both of her ears were infected which makes the second ear infection in 40 days :( Her ears have stayed infected ever since she was taken off her preventative antibiotic for the kidney reflux. Her tubes fell out earlier in the year. Anyway, we discussed putting her back on a preventative antibiotic to try and keep the ears healthy and avoid another procedure (ear tubes) since she's had so much done lately.

While we were at the doctor's office, I mentioned that her speech therapist commented about her head seeming bigger. He asked his nurse to measure her head, and sure enough, he agreed that it had grown a bit too much for his liking in the past 2 months. So, he made a call to her Neurosurgeon to see what the plan would be.

In the meantime, Whitney was feeling better, but still arching (opisthotonus) like crazy over the weekend. Well, last night (Monday) Whitney was playing on the living room floor and we noticed she suddenly got quiet and turned onto her side, but still arching. Jason went over to pick her up and he said that she was "out of it." She just stared at him and seemed like she was dazed. He also said that her pupils were two different sizes. He talked to her and tried to get her to respond, and finally after a few minutes she became alert. However, she was really groggy and tired right afterward for several minutes. Then, I went back into the living room where she had been playing and found a huge chunk of her hair on the floor. I guess she'd pulled out her hair during this "episode" and never uttered a peep about it. We were concerned, so I called the doctor on call. He recommended that we watch her overnight and if she didn't have another episode to bring her in to the office this morning (Tuesday). So, we took her in this morning.

The Pediatrician evaluated her and listened to our story and decided he thought she'd had a seizure. So, he called the Neurosurgeon and Neurologist again and we have an appointment set up for Thursday morning at Cook Children's with the Neurosurgeon. The nurse from that office called today and recommended that we bring a CT scan, so we had to run over to Hendrick and get a STAT CT scan today. The nurse at Cook also told us that from now on we should skip the calling the doctor bit and bring her directly to the Cook ER if we suspect seizure activity given her history. We were told to expect to stay overnight on Thursday if the doctor feels that she needs to be admitted for evaluation. So, we are headed to Fort Worth on Thursday morning bright and early praying that everything is fine. I'll update when we know more.